PROJECTS
Survival rates in childhood cancer are increasing. Although this is a great success, up to 60 to 70% of childhood cancer survivors suffer from cancer- and treatment-related long-term effects that need life-long follow-up care.
We conduct and support collaborative research work on long-term follow-up care, develop guidelines and are a resource of research based information concerning all late side-effects of cancer treatment.
Current projects PanCare is working on:
YARN
The European Youth Cancer Network (YARN) is an ambitious EU co-funded initiative designed to empower young people affected by cancer through peer support, digital innovation, and inclusive care. Building on the legacy of EU-CAYAS-NET and OACCUs, YARN strengthens a growing European network of adolescents and young adults (AYA) impacted by cancer.
PanCare4AYA
PanCare4AYA is a European-funded research project that will develop an international clinical guideline for screening and follow-up of late effects of Adolescent and Young Adult (AYA) cancer, which will be implemented via a novel person-centred screening programme (AYA Cancer Survivor Screen). The project will improve the health and quality of life of survivors across Europe through better Survivorship Care.
e-QuoL
e-QuoL is an EU-funded project that aims to provide children, adolescents and young adults who have survived cancer with e-health tools designed specifically for and with them to help them manage their health. Its ultimate goal is to use e-health tools to promote equality in quality of life for children, adolescents and young adult cancer survivors in Europe.
UNIFIED
UNIFIED is a five year, €27 million global public private partnership funded by the Innovative Health Initiative (IHI). Led by Erasmus University Rotterdam and Pfizer, and uniting 40 partners across academia, healthcare, patient advocacy, and industry, UNIFIED is transforming how healthcare decisions are made by putting patient voices at the centre.
Previous projects PanCare has been working on:
PanCareSurPass
PanCareSurPass was an EU-funded project looking at how to more widely implement the digital Survivorship Passport (SurPass) to improve survivorship care for survivors of childhood and adolescent cancer in Europe. PanCareSurPass developed, tested and implemented the SurPass in participating countries.
EU-CAYAS-NET
During the EU-funded project “EU-CAYAS-NET”, a “European Youth Cancer Survivors Network” alongside an interactive virtual platform was develeoped. The network fostered social networking, peer-support, knowledge-exchange.
UNICA4EU
UNICA4EU was an EU-funded initiative with the goal of mapping the current landscape of Artificial Intelligence (AI) applications for Childhood Cancer to understand how AI can help improve care pathways in the EU. A one-stop portal to host and curate resources and insights on Childhood Cancer and liaise future opportunities to expand the reach and uptake of clinical AI applications.
PanCareFollowUp
PanCareFollowUp was an EU-funded project looking at how to best deliver survivorship care to survivors of childhood and adolescent cancer in Europe. The aim of PanCareFollowUp was to deliver care according to recently developed guidelines using an innovative model for person centred care that empowers survivors and supports self-management.
PanCareLIFE
PanCareLIFE was a 5-year EU Framework 7 Programme in the Health Theme that studied the impact of treatment regimes on the long-term health of childhood cancer survivors. Specifically, PanCareLIFE evaluated the risks of impairments in female fertility, in hearing, and in quality of life.
PanCareSurFup
PanCareSurFup was a consortium of 16 European institutions in 11 countries, funded by the 7th Framework Programme of the EC, and carried out research studies into late effects of treatment for cancer, established guidelines for follow-up, and disseminated the results and provided training and workshops for stakeholders.
Other projects PanCare is or was involved in:
Survivorship Passport
The Survivorship Passport (SurPass) is a tool to provide all European childhood cancer survivors with optimal long-term care. It provides instant access to the medical history of patients who ended a cancer therapy, making survivors and healthcare professionals aware of the potential risks or late effects stemming from the previous disease and treatment received.
JARC
The Joint Action on Rare Cancers (JARC) was a 3-year initiative that aimed to formulate policy recommendations on rare cancers that can be implemented by Member States and in relevant EU initiatives. PanCare led the task of consolidating guidelines and recommendations on models of healthcare for survivors of childhood cancers, including long-term follow-up, transition to adult medicine, and the use of a Survivorship Passport.