USES CASES AND INFORMATION MODELS FOR SURPASS
WP3 developed the main use cases in the implementation of SurPass to create a SurPass v2.0 for survivors (including the TS and SCP), with actions to generate, validate, access and update the SurPass, where HCPs and CCS are users.
Information models for SurPass v2.0 were created, with variable types mapped to information items.
| Information item | Variable type |
|---|---|
| Treatment Summary | |
| Medical History | Genetic diseases |
| Comorbidities | |
| Cancer Diagnosis | Date |
| Histopathology (optional link to full report) | |
| Topography (optional link to full report) | |
| Cancer Diagnosis | Surgical intervention |
| Chemotherapy | |
| Stem cell transplantation | |
| Immunotherapy | |
| Radiotherapy | |
| Name of frontline protocol | |
| Guidelines/Recommendations | International Late Effects of Childhood Cancer Guideline Harmonization Group |
| PanCareFollowUp (PCFU) Guidelines Working Group | |
| SCP and other LTFU data | Organizational aspects of the LTFU setting |
| the personnel involved | |
| the components (which screening tests) of the LTFU | |
| the time the LTFU should be initiated and the intervals between the visits (Frequency) | |
| Follow-up for Malignant Events | Screening tests for other malignant LEs (second, subsequent Malignant Neoplasms (SMN)) |
| Medical visits | |
| Imaging or laboratory tests | |
| Intervals of screenings | |
| Actions to take in case results are not within normal range | |
| Follow-up for non-Malignant Events | System or organ at risk |
| Disorder | |
| Medical visits | |
| Intervals of screening | |
| Actions to take in case results are not within normal range | |
From here, extensive work was done in each country to develop more detailed use cases, following a methodology that could be applied in new settings in future.
The summary above about the use cases and information model will be made available on the PanCare website in the Toolkit. Clinics implementing the SurPass in future will be provided with further details by the SurPass provider to develop tailored use cases to support implementation.
