CRANIOFACIAL GROWTH PROBLEMS

Consensus-based recommendation for surveillance of craniofacial growth problems a

This page is part of the PanCare follow-up recommendations for surveillance of late effects. Click here, for more information on these recommendations.

Who is at risk for craniofacial growth problems?

CAYA cancer survivors treated with

  • radiotherapy to a volume exposing the craniofacial area, including TBI, especially after higher doses and at a young age
  • surgery to the face, especially at a young age

What problems might occur?

  • Craniofacial growth disturbance

  • Orbital hypoplasia
  • Psychological adjustment difficulties due to craniofacial growth problems

What surveillance modality should be used and at what frequency should it be performed?

  • A physical exam for craniofacial growth problems
    at least every 5 years, starting at entry into long-term follow-up

What should be done if abnormalities are identified?

  • Refer to a reconstructive craniofacial surgeon if craniofacial growth problems are identified

  • Perform a psychosocial history with specific attention to adjustment difficulties and refer to a psychologist if clinically indicated

Disclaimer

While PanCare strives to provide accurate and complete information that is up-to-date as of the date of publication, we acknowledge that the sequence of referral and diagnostic tests might vary according to the local and national healthcare system logistics.

It is recognised that survivors and their healthcare professionals have the final responsibility for making decisions concerning their long-term follow-up care. As such, they may choose to either adopt these recommendations or not to do so after individual informed discussion. It is good practice to document this decision.

In addition to regular surveillance, real-time awareness and prompt reporting of new symptoms and signs is essential to the early detection and timely treatment of late effects.

No warranty or representation, expressed or implied, is made concerning the accuracy, reliability, completeness, relevance, or timeliness of this information.

The PanCare materials are free to use for anyone aiming to inform about late effects and long-term survivorship care. However, no financial advantage may be achieved. All communication should reference PanCare and link to the PanCare website.

a Perform a psychosocial history with specific attention to adjustment difficulties and refer to a psychologist if clinically indicated a Further recommendations regarding dental and oral problems are specified in the Consensus-based recommendation for surveillance of dental and oral problems