PANCARE FOLLOW-UP RECOMMENDATIONS FOR SURVEILLANCE OF LATE EFFECTS

Here you can find the latest version of the PanCare Follow-up recommendations for surveillance of late effects. These recommendations were originally developed under the PanCareFollowUp project in 2020. The recommendations were updated by the PanCare Guidelines Group in 2024.

You can either download the full PDF with all recommendations using the buttons below or you can use the side menu on the left to browse through the individual recommendations.

Here you can find the latest version of the PanCare Follow-up recommendations for surveillance of late effects. These recommendations were originally developed under the PanCareFollowUp project in 2020. The recommendations were updated by the PanCare Guidelines Group in 2024.

You can either download the full PDF with all recommendations using the buttons below or you can use the menu on top to browse through the individual recommendations.

How were the recommendations developed?

Several evidence-based guidelines incorporating surveillance recommendations for a number of late effects have been developed by the International Guideline Harmonization Group (IGHG) and the PanCare Network, involving healthcare professionals (HCPs), researchers and survivors.

Consensus-based pragmatic recommendations were developed by PanCareFollowUp for additional topics relevant to Survivorship Care, where evidence-based guidelines were not expected to be completed or had not yet been started before the Care intervention cohort study initiation. 1

To develop these consensus-based recommendations, a European expert panel of specialists and survivors involved in PanCareFollowUp, as well as external experts and survivors, was formed. Four existing national long-term follow-up guidelines groups (United Kingdom Children’s Cancer and Leukaemia Group, Dutch Children’s Oncology Group, Scottish Intercollegiate Guidelines Network and the Children’s Oncology Group from North America) were used to identify, extract and compare existing recommendations. Following a robust consultation process involving 19 European countries, 25 consensus-based recommendations were agreed and published. 1 In the update in 2024, 3 new IGHG guidelines were included in the PanCare Follow-up recommendations (Pulmonary problems, Low bone mineral density and an update of the Cardiomyopathy guideline).

When using these recommendations, it is important to take note of the cross-references that are indicated at certain recommendations. Some measures of surveillance (e.g. weight, height, BMI, blood pressure, fasting glucose or lipid profile) may be performed in primary care in appropriate circumstances.

These recommendations are targeted towards healthcare professionals. Please visit the PLAIN language summaries for more information on late effects and long-term survivorship care for survivors.

What is the PanCareFollowUp project?

PanCareFollowUp is an EU-funded project looking at how to best deliver survivorship care to survivors of childhood and adolescent cancer in Europe. The aim of PanCareFollowUp is to deliver care according to recently developed guidelines using an innovative model for person centred care that empowers survivors and supports self-management.

Disclaimer

While PanCare strives to provide accurate and complete information that is up-to-date as of the date of publication, we acknowledge that the sequence of referral and diagnostic tests might vary according to the local and national healthcare system logistics.

It is recognised that survivors and their healthcare professionals have the final responsibility for making decisions concerning their long-term follow-up care. As such, they may choose to either adopt these recommendations or not to do so after individual informed discussion. It is good practice to document this decision.

In addition to regular surveillance, real-time awareness and prompt reporting of new symptoms and signs is essential to the early detection and timely treatment of late effects.

No warranty or representation, expressed or implied, is made concerning the accuracy, reliability, completeness, relevance, or timeliness of this information.

The PanCare materials are free to use for anyone aiming to inform about late effects and long-term survivorship care. However, no financial advantage may be achieved. All communication should reference PanCare and link to the PanCare website.

This guideline should be cited as: PanCare Guidelines Group. PanCareFollowUp Recommendations for long-term follow-up care of childhood, adolescent and young adult cancer survivors. 2024.

Contact

If you have any questions about the PanCare Follow-Up Recommendations for Surveillance of Late Effects you can contact info@pancare.eu.

1 van Kalsbeek RJ, et al. European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer. Eur J Cancer. 2021;154:316-328.