PanCare Board Elections 2024

The election for the new members of the PanCare board are now open until 31 March 23:59 CEST

As PanCare board we strive for an optimal mix of medical doctors, researchers, nurses, other professionals and survivors and parents in the board. Therefore we are very happy with the applications we received for the new PanCare board, bringing new experiences and backgrounds. Two current board member will step down and two are running for re-election. This means you can vote up to four candidates for the new PanCare board.

Click on a candidates name to see more information.

Charlotte Demoor
Desiree Grabow
Patricia McColgan
Monica Muraca
Lieselotte Wauters

All PanCare members have received a username and password to vote in these elections by mail.
If you have lost these or have any other questions please send an email to info@pancare.eu

Your vote will be stored anonymous and the current board or the election committee will not be able to identify your vote. The Election ID and Election pass you received will be deleted immediately after the elections.

The new board will be installed during the General Assembly, organised online, 24 April 2024.

Voting for the PanCare board elections is closed

Charlotte Demoor

-Radiotherapy oncologist
-Epidemiological and Public health researcher at the unit Inserm U1018, team “Radiation epidemiology, clinical epidemiology and cancer survivorship”, Villejuif.

Since 2008 Charlotte has provided long term follow up (LTFU) consultations to childhood and young adulthood cancer survivors) age 12 to late adulthood and is currently in charge of 2 LTFU programs in Western part of France at the university hospitals of Angers and Caen.

Charlotte is an active member of the PanCare board since 2021 and member since 2015. She  is involved in the IGHG, the development of the PLAIN brochures, the  PanCare guideline dissemination group, and the PanCare educational days and annual meetings.

Charlotte undertakes research and is involved in several projects across France and Europe focusing on LTFU care and risk of sequelae. She is coordinator of a 4 year European wide project, e-QuoL, started in january 2024: e-Health tools to promote Equity in Quality of Life for CAYACS and their families (supported by PanCare and Harmonic consortia). In France, for example, she coordinates the DeNaCaPST program, concerning second cancers screening, BICHe, focusing on endocrine sequelea, developed the LOG-after tool, a digital tool to empower CAYACS in their follow-up.

In addition Charlotte is a member  of the scientific committee of the French national CAYACS association, Les Aguerris, and of GO-AJA (French scientific association for AYAC patients), is also the co-chairwoman of the LTFU  committee of the SFCE (Société Française des Cancers de l’Enfant) recently  reelected.

Desiree Grabow

Deputy Head of the Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry (GCCR)

Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Centre Mainz at Johannes Gutenberg-University Mainz.

Desiree Grabow is a founding member of PanCare and holds a doctoral degree in epidemiology. She is Deputy Head of the Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry (GCCR) at Institute of Medical Biostatistics, Epidemiology, and Informatics, University Medical Centre Mainz at Johannes Gutenberg-University Mainz.

At GCCR, she is Lead of the Long-term surveillance of GCCR: Planning, Coordination, Conduct and Analysis of GCCR-Routines and Projects with external Collaboration partners; Focus on Epidemiology of late effects after childhood cancer; long-term surveillance of former childhood cancer patients in Germany (cohort of more than 40,000 patients).

With Riccardo Haupt and Kylie O´Brien she forms the Management Team of PanCareSurPass, about implementing the Survivorship Passport in six European Countries. Desiree is the Coordinator, with overall responsibility for the project. She also leads the data centre in WP4, overseeing data collection, quality assurance and analysis of the implementation study data.

Desiree is involved as a partner in smartcare and eQuol. She was part of the Management Team in PanCareLIFE, and lead the Work-Package for Datacollection and Harmonization of PanCareSurFup.

„In case you want me to, I am happy to serve for another term for the PanCare Board to enable exchange and synergies between the scientific PanCare projects and the central organisation and activities of the PanCare Network.“

Patricia McColgan

Our son Rory was diagnosed with a brain tumour in 2008.  When he finished treatment, it became clear that there was no follow-up support to assist survivors in addressing late effects and to provide them with the best possible quality of life.

I am passionate about the power of collaboration and keeping the voice of those with lived experience central to any discussion about them.  My goal is to see survivorship services established throughout Europe, including Ireland.

I strongly believe that active participation of survivors and parents is essential to the success of PanCare and would be honoured to serve on the PanCare Board if chosen.

Activities:

  • Serve on NCCP (National Cancer Control Programme) CAYA Survivorship group and Chair of the communications Group
  • Co-Chair of annual CAYAS conference
  • Contributed to two national reports on CAYA survivorship
  • Long standing PanCare member
  • Participated in 12 meetings since Genoa 2013
  • Hosted PanCare in Dublin 2015
  • Involved in set up and delivery of the parents’ workshop 2022 & 2023
  • Reviewed the ‘Plain Guidelines’
  • Involved in paper on short term surveillance guidelines
  • Serve on CCI-Europe Survivorship Pillar
  • Involved in EU CAYAS net and participated in the 2023 peer visits

Monica Muraca

I’m Dr. Monica Muraca and I currently serve as clinical coordinator of the Late Effects Clinic at the Gaslini Institute in Italy.

My experience in the management of long-term effects in childhood cancer survivors began in 2016 with my progressive involvement in several European projects focused on survivorship and in the definition of IGHG guidelines.

Through my journey within the PanCare Community, I have learned the importance of comprehensive support and initiatives aimed at improving the quality of live of survivors. In particular, each professional and personal experience have provided me with valuable insights into best practices and innovative approaches in survivorship care.

I am determined to actively contribute to ensure that each survivors and caregivers can face their challenges with adequate resources and a strong support network.  I believe my unique perspective can bring significant value to the PanCare’s goals.

I hope my passion and commitment will be considered in this candidacy.

Thank you for considering my application, I look forward to the opportunity to further discuss how my experience aligns with PanCare!

Lieselotte Wauters

I’m a nurse consultant with 3.5 years’ experience in long term follow up care after childhood cancer at the pediatric
hemato-oncology and stem cell transplantation in the University hospital in Ghent, Belgium. Previous to my work as nurse consultant, I worked for 13 years as nurse on the pediatric hemato-oncology and stem cell transplantation. In September 2023 I helped found the PanCare/SIOPE Late Effects Nurses Steering group and have been an active member ever since.

The main focus in my work is the transition from pediatric to adult survivorship care: giving all the survivors a complete survivorship passport, motivating them to adopt healthy lifestyles and to have attention to the best possible quality of life.

If I am elected on the board, I will help to organise PanCare Nurses’ workshops at the in-person PanCare meetings. I want to bring together all kind of nurses (nurses at the wards, specialists, consultants, academics, researchers… interested in the long term follow up and nursing care of survivors of child, adolescent and young adult cancer (CAYA). I want to help to develop links and collaborations with patient and parents groups and other professional groups working in this field to offer a coordinated and evidence based response to the needs of CAYAS cancer survivors and their families.