Country: Ireland
Role in the board: Parent

Our son Rory was diagnosed with a brain tumour in 2008.  When he finished treatment, it became clear that there was no follow-up support to assist survivors in addressing late effects and to provide them with the best possible quality of life.

I am passionate about the power of collaboration and keeping the voice of those with lived experience central to any discussion about them.  My goal is to see survivorship services established throughout Europe, including Ireland.

I strongly believe that active participation of survivors and parents is essential to the success of PanCare and would be honoured to serve on the PanCare Board if chosen.

Activities:

• Serve on NCCP (National Cancer Control Programme) CAYA Survivorship group and Chair of the communications Group
• Co-Chair of annual CAYAS conference
• Contributed to two national reports on CAYA survivorship
• Long standing PanCare member
• Participated in 12 meetings since Genoa 2013
• Hosted PanCare in Dublin 2015
• Involved in set up and delivery of the parents’ workshop 2022 & 2023
• Reviewed the ‘Plain Guidelines’
• Involved in paper on short term surveillance guidelines
• Serve on CCI-Europe Survivorship Pillar
• Involved in EU CAYAS net and participated in the 2023 peer visits